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Contributors Acknowledgements Foreword Philip LarkinIntroduction Sheila Payne, Jane Seymour and Christine Ingleton PARTONE Encountering Illness 1 Encountering Illness - Overview Sheila Payneand Jane Seymour 2 History and culture in the rise of palliative careDavid Clark 3 Involving or using? User involvement in palliative careTony Stevens 4 Referral patterns and access to specialist care JuliaAddington-Hall 5 Dying: places and preferences Carol Thomas 6 Anuncertain journey -- coping with transitions, survival and recurrenceMargaret O'Connor 7 Communication: patient and family Sue Duke andChristopher Bailey 8 Clinical assessment and measurement Michael Bennettand Jose Closs 9 Adapting complementary therapies for palliative care AnnCarter and Peter Mackereth PART TWO Transitions into the terminal phase10 Transitions into the terminal phase - Overview Jane Seymour andChristine Ingleton 11 Good for the soul? The spiritual dimension ofhospice and palliative care Michael Wright 12 Working with difficultsymptoms Jessica Corner 13 Pain: theories, evaluation and managementSilvia Paz and Jane Seymour 14 Balancing feelings and cognitions MariLloyd-Williams and John Hughes 15 Psychiatric aspects of palliative careMatthew Hotopf and Will Lee 16 Working with family caregivers in apalliative care setting Paula Smith and Julie Skilbeck 17 Personhood andidentity in palliative care Jenny Hockey 18 No way in: includingdisadvantaged population and patients at the end of life Jonathan Koffmanand Margaret Camps 19 Treatment decisions at the end of life -- aconceptual framework Bert Broeckaert 20 Palliative care in institutionsJeanne Samson Katz PART THREE Loss and bereavement 21 Loss andbereavement - Overview Sheila Payne 22 Nursing care at the time of deathCarol Komaromy 23 The care and support of bereaved people Mark Cobb24 Risk assessment and adult bereavement services Marilyn Relf25 Bereavement support services David Kissane 26 Helping children andfamilies facing bereavement in palliative care settings Liz Rolls PARTFOUR Contemporary issues 27 Contemporary issues - Overview ChristineIngleton and Jane Seymour 28 Professional boundaries in palliative careKaren Cox and Veronica James 29 The cost of caring -- surviving theculture of niceness, occupational stress and coping strategies SanchiaAranda 30 Education and scholarship in palliative care: a European nursingperspective Philip Larkin 31 Information and communications technology(ICT) in palliative care Peter Bath, Barbara Sen and Kendra Albright32 Research in palliative care Gunn Grande and Christine Ingleton33 Practice Development in Palliative Care Katherine Froggatt and MaryTurner 34 Policy and palliative care Jo Hockley 35 Palliative care inresource-poor countries Jennifer Hunt Conclusion Sheila Payne, JaneSeymour and Christine Ingleton