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【物言わぬ協力者:被験者と研究倫理】

Silent Partners:Human Subjects and Research Ethics '16

Dresser, Rebecca  著

在庫状況 お取り寄せ  お届け予定日 1ヶ月  数量 冊 
価格 特価  \10,184(税込)         

発行年月 2016年11月
出版社/提供元
出版国 アメリカ合衆国
言語 英語
媒体 冊子
装丁 hardcover
ページ数/巻数 320 p.
ジャンル 洋書/生命科学・医学/医学一般/医学一般
ISBN 9780190459277
商品コード 1020676318
本の性格 学術書
新刊案内掲載月 2016年08月
商品URL
参照
https://kw.maruzen.co.jp/ims/itemDetail.html?itmCd=1020676318

内容

When is a human study ethical? For years, science and society have struggled with this question. Experts have put great effort into developing ethical principles and rules that adequately protect and respect volunteers in studies aimed at improving human health. But experts have missed something important. They have created a research ethics system without the help of people who know what it is like to be a research subject. This is a serious omission. Experienced research subjects can make valuable contributions to research ethics. People who have been in studies have information about the experience that other people can overlook. Their experience as subjects gives them special insights into ethics, too. Experienced subjects also know about problems that can lead people to refuse to join studies, or drop out before studies are complete. Scientists and ethicists often speak of subjects as partners in research, but the reality is quite different. Experienced subjects are rarely appointed to the advisory groups that create guidelines for ethical research, or to the committees that review individual studies to determine whether they meet ethical and regulatory standards. A large body of work describes the perceptions and viewpoints of people who have participated in research. But experts rarely use this material to guide improvements in human subject protection. Although subjects have the power to decide whether to participate in a study, they have little control over anything else that goes on in research. Silent Partners moves research subjects to the forefront. It examines what research participation is like for healthy volunteers and patients. It explains why subjects' voices should influence research ethics. Silent Partners shows how experienced research subjects can become real-not just symbolic-partners in research.

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